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Previous Achievements

To understand the starting point for our Preparing for adulthood work – go to the bottom of the page to discover what parent carers wanted to know; and then review our progress each year and any further parent carer questions.

Progress 2014-2015

To improve the Preparing for Adulthood services provided for SEND young people (14+), we are currently working with the local authorities on:-

  1. Preparing for Adulthood: We have 4 parent carer trainers working with staff trainers to jointly deliver training courses on Preparing for Adulthood principles.
  2. Personal Budgets: We have 2 parent carer reps on the BCC working group which is developing how personal budgets will operate in Bristol when they are launched in Sept 2014. They are looking at what services can be provided through personal budgets and what form that could take. They are also working on the pilots (due in Sept) which should allow some parent carers to have personal budgets for travel to school, continence products, and short breaks. For more information on what a Personal Budget is see our pages on SEN Reforms.
  3. Preparing for Adulthood: We are working with Bristol NHS to finalise their transitions pathways from children's health service to adult ones. Do you want to get involved?
  4. The Integrated Service for 0-25 year olds.
  5. Under this service there is the new 18-25 yrs Care Management Team. This is made up of the Preparing for Adulthood Team, and the former Adult Health & Social Care's Learning Difficulties Disability Team). The new Team will cover a broader range of disabilities, and will take on new cases as teenagers become young adults.

Progress 2013-2014

  • BCC launched its final Transitions Strategy and Protocol, and now expects each department to implement the proposals in it.

  • The Transitions Board ceased to exist. A Transitions Forum will be formed in future to review progress, and we will need a rep for it.

  • Our reps became members of several BCC working groups looking at the SEN reforms due to start in Sept 2014, including ones covering: training materials about Preparing for Adulthood; the model for a new Integrated Service for 0-25 years olds with SEND; and personal budgets.

  • In order to develop the personal budgets system for Bristol, we provided a presentation and ran a workshop on it at our Annual Participation Event in March 2014.

  • The views expressed by parent carers about what they want choice and control over were fed back to the local authorities who used them in their planning.

  • Shared Lives started actively recruiting foster carers for young adults transitioning. See their website for more information.

  • We started discussions with NHS Bristol about the transitions pathways they were developing for disabled young people who use GP, consultant, hospital, and specialist services, so that their care is continuous from child health to adult health services.

Progress 2012-2013

  • Through our reps on the Transitions Board, we started to work with the local authorities on the development of the Transitions Protocol.

  • In order to discover what parent carers felt about the person-centred planning process being developed and future personal budgets, we provided presentations and ran workshops on these topics at our Annual Participation Event in March 2013.

  • The hopes and fears expressed by parent carers about person-centred planning and personal budgets were fed back to the local authorities who used them in their planning.

Question 2: Parent carers said: "what options are there for my young person to live independently in Bristol when they become an adult, and to undertake day-time activities?"

What Bristol Parent Carers did:

  • Started discussion with the Shared Lives Project to investigate how their service (which links foster carers with families so that the care of disabled adults can be shared) could be extended to help teenagers transitioning into adulthood.

What the local authorities did:

  • Shared Lives agreed to expand their service to cover the needs of teenagers – by looking at registering the Short Breaks carers who know the teenagers, attracting more foster carers, and offering 'buddies' for day-time activities.

Progress 2011-2012

  • Through our reps on the Transitions Board, we continued to assist with the development of the Transitions Strategy.

  • We developed two transitions maps to help parent carers.

  • We continued to push for improved information on transitions for parent carers, so BCC improved its Transitions web page.

  • BCC agreed to expand the Transitions Team's role beyond supporting only those young people with learning difficulties, starting with those on the autistic spectrum.

Starting Point  2010-2011

Question 1: Parent carers said: "what information is available for parent carers so that we can understand the transitions (14+) process?"

What Bristol Parent Carers did:

  • Arranged focus group meetings and consultations with staff from organisations involved with transition to discuss this problem.

  • Placed a parent carer representative on the Transitions Board.

  • Prepared a detailed response to the draft Transitions Strategy.

  • Started working with officials to develop a 'map' which shows how young people with different disabilities are supported through transition, and to try to resolve the inconsistencies.

What the local authorities did:

  • The Transitions Board started developing a strategy for disabled young people in Bristol to help them transition from childhood to adulthood.

  • Commissioned a Transitions Pilot at New Fosseway School to develop a person-centred planning process and materials.

What we discovered:

  • Bristol City Council's Transitions Team had only been providing social care support to young people with learning difficulties, who have an IQ below 70, and who were born with the condition (did not acquire it later on). They have now started to support some young people on the autistic spectrum (whose IQ is not below 70). It is unclear how young people with other disabilities are supported.

  • Connexions workers who provide transitions advice in specialist schools have expertise in disabilities; but the Connexions workers who assist in mainstream schools may not.

  • There is very little information for parent carers and young people about the transitions process in Bristol.

To get involved in any of these activities, and share your skills with us, click on our Contact Us page.

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