Do you have a key concern about any local service? Bristol Parent Carers can provide a route for raising it with service providers.
There are 3 ways for your issue to reach our monthly Steering Group:-
Either 1. Log onto www.bristolparentcarers.org.uk and fill in a comments box on any page
Or 3. Download and complete the form here. You can then email or post it to us.
New Philanthropy Capital is working with the Fischer Family Trust to develop an analytical service to help organisations better understand their impact on children and young people’s educational performance. They particularly want the views of non-profit organisations that work to improve educational outcomes for children and young people and measuring educational achievement outcomes after interventions. Closing date 14 September - click here for survey.
Healthwatch Bristol Open Advisory Group:
Services in the Community
Date: Wednesday 30 September, 6-8pm
Venue: The Park Centre, Daventry Road, Knowle, Bristol, BS4 1DQ
To register: http://goo.gl/X5FmZL
You are invited to the Healthwatch Bristol 'Services in the Community' event.
Ever thought about the Children's Hospital?
They want your opinion...
The Bristol Royal Hospital for Children is proposing a change to its entry/exit route between 22.00 and 06.00 (‘out of hours’) and we would like your views on this. Please could you take a moment to complete the following survey: https://www.surveymonkey.com/s/BRHCroute
It should take between 1 and 5 minutes of your time. The survey will close on Monday 13th July. Here is some further information on this proposal:
The current situation:
At present, patients, staff and the public can access the Children’s Emergency Department via two entrances:
The main entrance of the Children’s Hospital on Upper Maudlin Street (Photo 1 below)
Via the BRI welcome centre in hours (Photo 2 below ) or side entrance of the BRI out of hours (Photo 3 below), both of which are also accessed from Upper Maudlin Street (photo 2 & 3).
Out of hours, portering staff are not consistently based at the main entrance if the Children’s Hospital. The doors to the main entrance are locked, but can be accessed via an intercom
Parents or carers wishing to enter or exit the Children’s Hospital do so via the main entrance/exit, using the intercom system
The proposed changes:
The Trust would like to adopt a unified route for both ADULTS & CHILDREN attending either Emergency Department, 24 hours a day.
In hours, the entrance to the Emergency Departments would be via the Welcome Centre (photo 2) and out of hours, via the entrance in Photo 3.
Parents or carers of existing ward patients wishing to enter or exit the Children’s Hospital out of hours, would do so via the same route (Photo 2). (They would continue to use the main entrance to the Children’s Hospital in hours.)
Points to note:
Swipe access via the main entrance would be maintained out of hours for staff only
There is access via a lift as well as stairs from the entrance in photo 3. Attached is a photographic description of the route proposed that begins in Photo 3.
There would be investment in new signposting to ensure the routes advised were clear to patients, staff and the public
Why are we proposing this change?
To improve the security of the Children’s Hospital out of hours
To reduce opportunities for unknown persons to enter or tailgate into Children’s Hospital out of hours
The national Learning Disabilities Mortality Review (LeDeR) Programme’s steering group is looking for a family member to join the LeDeR Multiagency Advisory Board alongside Vicki Raphael (see http://inclusioneast.co.uk/vicki-raphael
The review will last a minimum of 3 years and meetings will be 6 monthly (probably in Bristol or London)
Members of the Multiagency Advisory Group and the Advisory Group for people with learning disabilities will be paid an hourly fee of £15 for attendance.
Travel costs and substitute care costs are also available.
The first multiagency Advisory Group meeting will be towards the end of August.
The application process for membership is straight forward and would need to be completed by 3rd August.
If you would like any further information please let Pauline Heslop know – all her contact details are part of the invitation.
If you are interested in the opportunity
•your name and contact details (address, email address, phone number plus preferred times and type of contact) and
•tell us about your relevant experience and why you are interested
by Monday 3rd August to:
Pauline Heslop, Norah Fry Research Centre, 8 Priory Road, Bristol BS8 1TZ
If you would like further details please contact Pauline as above or on telephone number 0117 3310973.
Please can you help by taking part in this anonymous global study?
> Are you a partner with ASC (self-diagnosis included) or a partner of someone with ASC?
> Are you currently in a relationship for 6 months or more?
> Are you aged 18 years or over?
Little is scientifically known about couple relationships where one or both are on the autism spectrum (ASC). Many books and articles describe individual experiences but we simply do not know enough scientifically about such relationships, especially from the perspective of the ASC partner. As a PhD student psychologist researcher, I have designed the REACH study to raise awareness, acceptance and to further understanding in order to inform policy practice and to influence organisations to provide or improve services.
Beverley Winn, BSc, MSc Psychol,
Doctoral Student & Parent Consultant,
Wales Autism Research Centre,
School of Psychology,
Tel: 02920 870839