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Help: Finding Your Way – written by a parent carer

Supporting a child with complex medical needs

Finding Your Way is a deeply powerful and beautifully written personal reflection on parenting a child with medically complex needs. Through honest storytelling and gentle insight, it captures the emotional and practical realities faced by families stepping into a world of hospitals, diagnoses, uncertainty and unwavering love.

This guide offers comfort, connection, and solidarity to those just beginning this journey, and a valuable window into lived experience for practitioners. Families can order a free copy through Bristol Parent Carers, and professionals can access copies for a small charge.

A huge thank you to the author for sharing something so personal. Putting language to experiences shaped by fear, heartbreak, resilience, hope and happiness takes extraordinary strength and we know these words will stay with everyone who reads them.

Whether you’re a parent feeling lost in the system, or a professional wanting to better understand the families you support, this is a must read.

Complete the form below to request your copy, or scroll down to view the online version and use the view options to view in Full-screen.

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