A-Z information directory

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For an A-Z of medical conditions, see here

A

Accessing public services – Guide for parents. Cerebra

ADHD NICE Guidance  – This guideline covers recognising, diagnosing and managing attention deficit hyperactivity disorder (ADHD) in children, young people and adults. ( see ‘J’ for judicial review)

ADHD Strategies and support – Additude

ADHD booklet – ADHD Foundation

ADHD – Bristol Parent Carers info page

AFRID – Avoidant/restrictive food intake disorder – Beat eating disorders

Alternative learning provision (ALP) – Alternative Learning Provision is for pupils who can’t attend mainstream educational settings because of health, emotional or behavioural reasons. There is more info here.

Annual reviews SOSSEN: What annual reviews are for, how to prepare for them and what happens after an annual review.

Appeal: A Guide to the SEN Tribunal by Aoife Murray, SEN Specialist. Douglas Silas Solicitors (also see template letters)

Appeal: Appeals as part of the National Trial -Ipsea Charity 

Appeal: Advice on mediation – SEN help

AppealAdvice on Tribunal appeals – Contact

Appeal: Download the forms needed for appeals – SEN help

Appeal: Guidance for producing a First Tier Tribunal Bundle – Guidance for producing a Tribunal Bundle for the First-tier Tribunal SEND (SEND40)

Appeal: Preparing for an appeal – Ipsea Charity

​Appeal: When can you appeal to the First Tier Tribunal, SENDIST?

Aphasia -Child Neurology Foundation

Apraxia (Speech sounds) -Speechdisorder.org  

Auditory Processing Disorder – Great Ormond Street Hospital

Autism – Information and support.

Autism and education – information from Ambitious about Autism

Autism Act – National Autistic Society

B

Behavioural difficulties – Beacon House

Behaviour – EEF guidance for improving behaviour in schools

Behaviour management in schools – Studio 3

Bercow 10 years on  a report – on the state of provision for children’s speech, language and communication needs (SLCN) 

Bereavement and loss – Advice and information from Winston Wish. (Also see Grief and loss)

Best endeavoursA key duty for certain settings is the duty to use their ‘best endeavours’ to secure special educational provisions for all children or young people for whom they are responsible. Read more on IPSEA

Blind – Support and advice from RSBC

Blue Badge Scheme  – Information from Bristol City Council

Brain Injury (ABI) Acquired Brain Injury 

Bristol Support Plan- a non statutory plan used by education settings for pupils that need extra support

C

Carers assessment in England – Factsheet for parents. Cerebra

Case Law Noddy Guide 2019 – Matrix law

Case Law updates  – Council for Disabled Children

CDC’s case law – digest service provides essential updates on the latest judicial decisions affecting disabled children and young people and those with SEN. 

Cerebral Palsy Support for people affected by Cerebral Palsy

Cerebal Palsy  Speech therapy for Cerebral Palsy explained

(SEND) Code of Practice 2015 – Guidance on the special educational needs and disability (SEND) system for children and young people aged 0 to 25, from 1 September 2014

Children and Families Act 2014

Communication Friendly Environment – Tips from Communication Trust (PDF)

Complaints about a local authority -Information and model letter from Ipsea

Continence – Bowel and bladder issues. Advice from ERIC charity

Coproduction – Advice from Gareth Morewood (also see parental engagement)

Coproduction – What is coproduction? Moving from theory to practice. By G.Morewood

Council Tax Discounts – for disabled people 

CTR (Care Education and Treatment Review) – A CTR is a meeting to check that a person’s care and treatment is meeting their needs.

D

Deafness – National Deaf Children’s Society 

Deaf Information – British Deaf Association 

Developmental Language Disorder (DLD) – advice and information from NAPLIC

Developmental Language Disorder (DLD) – Videos to learn more about DLD from This is DLD

Developmental Language Disorder (DLD) – What is DLD? RCSLT

Diabetes UK – Charity

Diabetes JDRF – Information and support for Type 1 Diabetes

Disability living allowance (DLA) – Mythbuster for parents and carers from Cerebra 

Disability Rights

Disabled Children’s legal Handbook Available to download or buy An accessible guide to the legal rights of disabled children and their families in England and Wales.

Disabled Students Allowance 

Disabled young people – Advice for Disabled young people going to university. Steve Broach.  

Disability Discrimination – Ipsea

Disability Discrimination – Child Law Advice

Disability Discrimination Technical Guidance for Schools – EHRC

Diversity – Diversity refers to the range of differences that exist among people, including differences in culture, ethnicity, gender, age, ability, and other characteristics. It is about recognizing and valuing these differences, and creating an environment where everyone feels respected and included.

DLA – Disability Living Allowance (DLA) is the main benefit for disabled children in England, Wales and Northern Ireland. It is not taxable, and it doesn’t count as income for other benefits.

Down’s Syndrome Association

Down’s Syndrome Education Advice, Research, Information

Down syndrome community newsMaking Chromosomes Count

Draft EHCP – SENhelp

Draft EHCP. Negotiate a Draft EHCP – SOSSEN

Draft EHCP – Model letter: Responding to an EHCP draft

Dyscalculia – Maths difficulties and Dyscalculia. British dyslexia association

Dyscalculia – Advice for parents and schools. Ronit Bird

Dyslexia – General information. Understood.org

Dyspraxia – Dyspraxia Foundation

Dysphagia – RCSLT

E

EAL (English as an additional language) and SEND – advice and information from NALDIC

Eating disorders – Information and support form BEAT

Eating disorders in children under 12 – Information from Hope

Eating disorders – Toolkit for schools

EBSA (emotional-based school anxiety) – mentally healthy schools

EHCNA: EHC Needs Assessments – Ipsea (also see Template letters)

EHCP: EHC assessment: how to request an assessment. – What must happen in an EHC assessment. How to appeal a decision 

EHCP: EHC assessment -Model letter: Request an EHC assessment

EHCP: EHC assessment: From requesting an assessment to appealing a decision  – SOSSEN

EHCP: EHCP advice – SOSSEN

EHCP: EHCP provision -Model letter: Complaining when the provision is not being made

EHCP: Draft EHCP – SEN help

EHCP: Draft EHCP. Negotiate a Draft EHCP – SOSSEN

EHCP: Draft EHCP – Model letter: Responding to an EHCP draft

Ehlers-Danlos (EDS) – Information and support from EhlersDanlos.Org 

Ehlers-Danlos (EDS) – Information and support from HMSA

Ehlers-Danlos (EDS) – Support groups

Ehlers-Danlos (EDS) – Toolkit from RCGP

Encephalitis: Advice and information – Eden Dora Trust 

EOTASSpecial needs jungle

Epliepsy Action

Epilepsy – ESUK epilepsy advice and support

Epilepsy - The identification of educational problems in childhood epilepsy

Equality – Equality is about ensuring that everyone has the same opportunities and rights, regardless of their differences. It is about treating people fairly and without discrimination, and providing equal access to education, employment, healthcare, and other services. See also equity.

Equality Act 2010 Guidance

Equality Act (Disability) Regulations 2010

Equality Advisory and Support Service Advice, support, helpline

Equity – Equity is about providing the resources and support that individuals or groups need in order to achieve a fair outcome, based on their unique circumstances. It recognises that children and young people have different needs, opportunities, and abilities, and therefore require different resources and support in order to achieve the same outcome. In the context of education, for example, equity might mean providing additional resources or support to students who are disadvantaged or have special needs, in order to ensure that they have the same opportunities for success as other students.

Exclusions Advice – Ipsea

Exclusions Advice and Free Representation – School Exclusion Project 

Exclusion and Disability Discrimination Ipsea

Exclusions. Informal Exclusion – Ipsea

Exclusions What is legal? – Information from NCB, Ipsea ASCL, 

F

FAQ’s about Funding in schools for SEND

Foetal Alcohol Spectrum Disorder definition and support

Fragile X Syndrome

Funding information for SEND provision -SEN help

G

Global Developmental Delay

Glue Ear

Grief and Loss – Advice and support from Farleigh Hospice (also see bereavement and loss)

Grief and Loss – Young minds 

H

Hearing loss, Hearing Impairment

Holidays – a list on inclusive holiday venues

Hypermobility – Hypermobility Syndromes Association

Hospital passport – A Hospital Passport is a short 2-4 page document designed to help autistic people communicate their needs to doctors, nurses and other healthcare professionals

I

IPSEA Charity – Ipsea offer free independent information, advice, support and training

Irlen Syndrome

Inclusion: Inclusion is about creating an environment where everyone feels valued and supported, regardless of their differences. It is about actively promoting and embracing diversity, and ensuring that everyone feels welcome and able to participate fully in all aspects of society and it requires proactively enabling people to take a full part in the environment.

Incontinence – Eric

J

Judicial Review Information – SOSSEN

Judicial Review Blog – Why judicial review is a real remedy in SEND and disability cases. By Steve Broach, Barrister

L

Learning difficulties. Learning disabilities

Legal advice – advice for parents and carers on finding the right legal advice

Local Government Ombudsman (LGO)

Looked after children – advice and support from Family Action

Local Area SEND inspections, How can parents get involved? – Blog by C.Ryan

Local Area SEND Inspections. Where are we now? – Blog by Matt Keer  

Local Offer – SEN help  

M

Mediation advice – SEN help

Medical conditions – Guidance for schools supporting learners with medical conditions

Medical conditions in schools – Working collaboratively to keep children with medical conditions safe in school. 

Mental health first aid – Advice, posters, information for schools. MHFA England

Multi Sensory Impairment – Sensory support service

N

Neurodiversity – advice and information on neurodiversity and co-occurring conditions. Do-IT

Neurodiversity – advice and information on neurodiversity and co-occuring conditions. Genius Within

Occupational Therapy – What is occupational therapy?

Ordinarily Available Provision – a document which details the support schools in Bristol should offer to pupils, even if there is no diagnosis

OFSTED and OFSTED SEND Inspections

Find an Inspection report

Oppositional Defiant Disorder (ODD) and Conduct Disorder

P

Panel – a phrase used in Bristol to describe a collection of people who meet to decide the types of provision and support your child required. A panel is made us of school staff, educational psychologists and SEND team staff

Panel 1 – a phrase used in Bristol to describe the first panel decision in the EHCP process; when the Local Authority decide if they will carry out a needs assessment

Panel 2 – a phrase used in Bristol to describe the second panel decision in the EHCP process; when the Local Authority decide if they will issue an EHCP

Parental engagement – review of best practice (also see coproduction)

Parental engagement – Making conversations with schools count for all families. Whole school SEND (also see coproduction)

PDApathological demand avoidance PDA Society

Person centred planning – advice and information for schools

Person centred planning – research

Personal Budgets and Direct Payments

Physiotherapy – What is Physiotherapy? 

Play therapists in and around Bristol

Police passports – The aim of a police passport is to ensure that if police are called out to support you or your child, they will be aware of you/your Child’s needs

Preparing for Adulthood A guide 

R

Reasonable adjustments – are changes that should be made to an environment to allow people with disabilities to access it, read more on Special Needs Jungle.

S

Self-harm – Advice for those supporting people with learning disabilities

Self-harm – Guidance for schools (2014)

Self-harm – Information for parents/carers

Self-harm – Information about treating self-harm in children and teens

Situational mutism – Information from Maggie Johnson, SM specialist

Situational mutism – Information from SMIRA

SEND – Special Educational Needs and Disabilities

SEND Inspection – Guides for parents, carers, children and young people about inspections of local services for children and young people with SEND

SEND law and guidance – Code of practice, SEND Regs, Children’s and families act, plus template letters from SENhelp (also see template letters)

SENDIST Tribunal  -What the first tier tribunal does (also see ‘Appeals‘)

Sensory Processing Difficulties – Video 

Sensory Processing Difficulties – Info

Sensory Processing Difficulties – Book 

Sensory Processing Difficulties – Top tips for everyday life

Sleep tips  |  Sleep cards  |  Sleep mythbuster – From Cerebra

Social care in England and Social care in Wales – Cerebra

Social care information, advice and support – Inclusion London has worked with solicitors and specialists such as professor Luke Clements to put together resources to help disabled people and DDPOs understand how the system should work and what the law says.

Social Emotional Mental Health Needs (SEMH) – Toolkit from nasen

Social Emotional Mental Health Needs (SEMH) – Beacon House

Social Communication Disorder. Semantic Pragmatic Disorder – RCSLT

Solicitors: HCB

Solicitors: Irwin Mitchell

Solicitors: Simpson Millar

Solicitors: Sinclairs Law

SOS!SEN Charity – SOS!SEN offer a free, independent and confidential telephone helpline, drop in advice centres and information.

Special Educational Needs and Disability Regulations 2014 England Amendments

Special Educational Needs Code of Practice 2014

Special Educational Needs Code of Practice Guide – Douglas Silas Solicitors

Specific Learning difficulty

Speech Therapy Providers in and around Bristol

Speech and Language Therapy Factsheet – RCSLT

Speech, language and communication needs – Ican helpline

Speech, Language and Communication needs CPD for Teachers – Communication Trust

Speech, Language and Communication needs Information for Student Teachers – Communication Trust

Speech Sound Disorder – Child Mind

Stammering – Stammering.org

Supporting Speech, Language and Communication Needs – Communication Trust

Support Plan- a non statutory plan used by education settings for pupils that need extra support

Supporting Pupils with Medical Conditions at School – Statutory guidance about the support that pupils with medical conditions should receive at school.

T

#TeamSEND – You can find others within the SEND community for advice or support on Twitter by searching the hashtag #TeamSEND

Template letters – Addressing a wide range of difficulties parents and carers of young people with SEND might face. From Cerebra

Template letters – Appealing and challenging a wide range of difficulties parents and carers face accessing SEND processes 

Top up panel – a panel that decides how much funding a school will receive to support withs with SEND. Settings can request top up funding 3 times a year, they fillout a form requesting the funds and what they will be used for. Top up panels fund EHCPs and non statutory plans, like Bristol upport plans

Transition support – Downloadable resources available on our homepage

Transition to adulthood – audit tool for professionals

Transport advice -Simpson Millar Solicitors

Transport blog -By @KaraChrome

Transport support– SENTAS provides parents and young adults with information, advice and advocacy around issues with SEND home to school and college transport

Trauma Advice Information and Resources – Beacon House

Tribunals-Also see ‘Appeals’

Tourettes Action 

V

Visual Impairment -RSCB

Visual Processing difficulties -Understood.org

w

Williams Syndrome

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