For an A-Z of medical conditions, see here
A
Accessing public services – Guide for parents. Cerebra
ADHD NICE Guidance – This guideline covers recognising, diagnosing and managing attention deficit hyperactivity disorder (ADHD) in children, young people and adults. ( see ‘J’ for judicial review)
ADHD Strategies and support – Additude
ADHD booklet – ADHD Foundation
ADHD – Bristol Parent Carers info page
AFRID – Avoidant/restrictive food intake disorder – Beat eating disorders
Alternative learning provision (ALP) – Alternative Learning Provision is for pupils who can’t attend mainstream educational settings because of health, emotional or behavioural reasons. There is more info here.
Annual reviews SOSSEN: What annual reviews are for, how to prepare for them and what happens after an annual review.
Appeal: A Guide to the SEN Tribunal by Aoife Murray, SEN Specialist. Douglas Silas Solicitors (also see template letters)
Appeal: Appeals as part of the National Trial -Ipsea Charity
Appeal: Advice on mediation – SEN help
Appeal: Advice on Tribunal appeals – Contact
Appeal: Download the forms needed for appeals – SEN help
Appeal: Guidance for producing a First Tier Tribunal Bundle – Guidance for producing a Tribunal Bundle for the First-tier Tribunal SEND (SEND40)
Appeal: Preparing for an appeal – Ipsea Charity
Appeal: When can you appeal to the First Tier Tribunal, SENDIST?
Aphasia -Child Neurology Foundation
Apraxia (Speech sounds) -Speechdisorder.org
Auditory Processing Disorder – Great Ormond Street Hospital
Autism – Information and support.
Autism and education – information from Ambitious about Autism
Autism Act – National Autistic Society
B
Behavioural difficulties – Beacon House
Behaviour – EEF guidance for improving behaviour in schools
Behaviour management in schools – Studio 3
Bercow 10 years on a report – on the state of provision for children’s speech, language and communication needs (SLCN)
Bereavement and loss – Advice and information from Winston Wish. (Also see Grief and loss)
Best endeavours – A key duty for certain settings is the duty to use their ‘best endeavours’ to secure special educational provisions for all children or young people for whom they are responsible. Read more on IPSEA
Blind – Support and advice from RSBC
Blue Badge Scheme – Information from Bristol City Council
Brain Injury (ABI) Acquired Brain Injury
Bristol Support Plan- a non statutory plan used by education settings for pupils that need extra support
C
Carers assessment in England – Factsheet for parents. Cerebra
Case Law Noddy Guide 2019 – Matrix law
Case Law updates – Council for Disabled Children
CDC’s case law – digest service provides essential updates on the latest judicial decisions affecting disabled children and young people and those with SEN.
Cerebral Palsy Support for people affected by Cerebral Palsy
Cerebal Palsy Speech therapy for Cerebral Palsy explained
(SEND) Code of Practice 2015 – Guidance on the special educational needs and disability (SEND) system for children and young people aged 0 to 25, from 1 September 2014
Children and Families Act 2014
Communication Friendly Environment – Tips from Communication Trust (PDF)
Complaints about a local authority -Information and model letter from Ipsea
Continence – Bowel and bladder issues. Advice from ERIC charity
Coproduction – Advice from Gareth Morewood (also see parental engagement)
Coproduction – What is coproduction? Moving from theory to practice. By G.Morewood
Council Tax Discounts – for disabled people
CTR (Care Education and Treatment Review) – A CTR is a meeting to check that a person’s care and treatment is meeting their needs.
D
Deafness – National Deaf Children’s Society
Deaf Information – British Deaf Association
Developmental Language Disorder (DLD) – advice and information from NAPLIC
Developmental Language Disorder (DLD) – Videos to learn more about DLD from This is DLD
Developmental Language Disorder (DLD) – What is DLD? RCSLT
Diabetes UK – Charity
Diabetes JDRF – Information and support for Type 1 Diabetes
Disability living allowance (DLA) – Mythbuster for parents and carers from Cerebra
Disabled Children’s legal Handbook Available to download or buy An accessible guide to the legal rights of disabled children and their families in England and Wales.
Disabled young people – Advice for Disabled young people going to university. Steve Broach.
Disability Discrimination – Ipsea
Disability Discrimination – Child Law Advice
Disability Discrimination Technical Guidance for Schools – EHRC
Diversity – Diversity refers to the range of differences that exist among people, including differences in culture, ethnicity, gender, age, ability, and other characteristics. It is about recognizing and valuing these differences, and creating an environment where everyone feels respected and included.
DLA – Disability Living Allowance (DLA) is the main benefit for disabled children in England, Wales and Northern Ireland. It is not taxable, and it doesn’t count as income for other benefits.
Down’s Syndrome Association
Down’s Syndrome Education Advice, Research, Information
Down syndrome community news: Making Chromosomes Count
Draft EHCP – SENhelp
Draft EHCP. Negotiate a Draft EHCP – SOSSEN
Draft EHCP – Model letter: Responding to an EHCP draft
Dyscalculia – Maths difficulties and Dyscalculia. British dyslexia association
Dyscalculia – Advice for parents and schools. Ronit Bird
Dyslexia – General information. Understood.org
Dyspraxia – Dyspraxia Foundation
Dysphagia – RCSLT
E
EAL (English as an additional language) and SEND – advice and information from NALDIC
Eating disorders – Information and support form BEAT
Eating disorders in children under 12 – Information from Hope
Eating disorders – Toolkit for schools
EBSA (emotional-based school anxiety) – mentally healthy schools
EHCNA: EHC Needs Assessments – Ipsea (also see Template letters)
EHCP: EHC assessment: how to request an assessment. – What must happen in an EHC assessment. How to appeal a decision
EHCP: EHC assessment -Model letter: Request an EHC assessment
EHCP: EHC assessment: From requesting an assessment to appealing a decision – SOSSEN
EHCP: EHCP advice – SOSSEN
EHCP: EHCP provision -Model letter: Complaining when the provision is not being made
EHCP: Draft EHCP – SEN help
EHCP: Draft EHCP. Negotiate a Draft EHCP – SOSSEN
EHCP: Draft EHCP – Model letter: Responding to an EHCP draft
Ehlers-Danlos (EDS) – Information and support from EhlersDanlos.Org
Ehlers-Danlos (EDS) – Information and support from HMSA
Ehlers-Danlos (EDS) – Support groups
Ehlers-Danlos (EDS) – Toolkit from RCGP
Encephalitis: Advice and information – Eden Dora Trust
EOTAS – Special needs jungle
Epilepsy – ESUK epilepsy advice and support
Epilepsy - The identification of educational problems in childhood epilepsy
Equality – Equality is about ensuring that everyone has the same opportunities and rights, regardless of their differences. It is about treating people fairly and without discrimination, and providing equal access to education, employment, healthcare, and other services. See also equity.
Equality Act 2010 Guidance
Equality Act (Disability) Regulations 2010
Equality Advisory and Support Service Advice, support, helpline
Equity – Equity is about providing the resources and support that individuals or groups need in order to achieve a fair outcome, based on their unique circumstances. It recognises that children and young people have different needs, opportunities, and abilities, and therefore require different resources and support in order to achieve the same outcome. In the context of education, for example, equity might mean providing additional resources or support to students who are disadvantaged or have special needs, in order to ensure that they have the same opportunities for success as other students.
Exclusions Advice – Ipsea
Exclusions Advice and Free Representation – School Exclusion Project
Exclusion and Disability Discrimination Ipsea
Exclusions. Informal Exclusion – Ipsea
Exclusions What is legal? – Information from NCB, Ipsea ASCL,
F
FAQ’s about Funding in schools for SEND
Foetal Alcohol Spectrum Disorder definition and support
Funding information for SEND provision -SEN help
G
Grief and Loss – Advice and support from Farleigh Hospice (also see bereavement and loss)
Grief and Loss – Young minds
H
Hearing loss, Hearing Impairment
Holidays – a list on inclusive holiday venues
Hypermobility – Hypermobility Syndromes Association
Hospital passport – A Hospital Passport is a short 2-4 page document designed to help autistic people communicate their needs to doctors, nurses and other healthcare professionals
I
IPSEA Charity – Ipsea offer free independent information, advice, support and training
Inclusion: Inclusion is about creating an environment where everyone feels valued and supported, regardless of their differences. It is about actively promoting and embracing diversity, and ensuring that everyone feels welcome and able to participate fully in all aspects of society and it requires proactively enabling people to take a full part in the environment.
Incontinence – Eric
J
Judicial Review Information – SOSSEN
Judicial Review Blog – Why judicial review is a real remedy in SEND and disability cases. By Steve Broach, Barrister
L
Learning difficulties. Learning disabilities
Legal advice – advice for parents and carers on finding the right legal advice
Local Government Ombudsman (LGO)
Looked after children – advice and support from Family Action
Local Area SEND inspections, How can parents get involved? – Blog by C.Ryan
Local Area SEND Inspections. Where are we now? – Blog by Matt Keer
Local Offer – SEN help
M
Mediation advice – SEN help
Medical conditions – Guidance for schools supporting learners with medical conditions
Medical conditions in schools – Working collaboratively to keep children with medical conditions safe in school.
Mental health first aid – Advice, posters, information for schools. MHFA England
Multi Sensory Impairment – Sensory support service
N
Neurodiversity – advice and information on neurodiversity and co-occurring conditions. Do-IT
Neurodiversity – advice and information on neurodiversity and co-occuring conditions. Genius Within
O
Occupational Therapy – What is occupational therapy?
Ordinarily Available Provision – a document which details the support schools in Bristol should offer to pupils, even if there is no diagnosis
OFSTED and OFSTED SEND Inspections
Oppositional Defiant Disorder (ODD) and Conduct Disorder
P
Panel – a phrase used in Bristol to describe a collection of people who meet to decide the types of provision and support your child required. A panel is made us of school staff, educational psychologists and SEND team staff
Panel 1 – a phrase used in Bristol to describe the first panel decision in the EHCP process; when the Local Authority decide if they will carry out a needs assessment
Panel 2 – a phrase used in Bristol to describe the second panel decision in the EHCP process; when the Local Authority decide if they will issue an EHCP
Parental engagement – review of best practice (also see coproduction)
Parental engagement – Making conversations with schools count for all families. Whole school SEND (also see coproduction)
PDA – pathological demand avoidance – PDA Society
Person centred planning – advice and information for schools
Person centred planning – research
Personal Budgets and Direct Payments
Physiotherapy – What is Physiotherapy?
Play therapists in and around Bristol
Police passports – The aim of a police passport is to ensure that if police are called out to support you or your child, they will be aware of you/your Child’s needs
Preparing for Adulthood A guide
R
Reasonable adjustments – are changes that should be made to an environment to allow people with disabilities to access it, read more on Special Needs Jungle.
S
Self-harm – Advice for those supporting people with learning disabilities
Self-harm – Guidance for schools (2014)
Self-harm – Information for parents/carers
Self-harm – Information about treating self-harm in children and teens
Situational mutism – Information from Maggie Johnson, SM specialist
Situational mutism – Information from SMIRA
SEND – Special Educational Needs and Disabilities
SEND Inspection – Guides for parents, carers, children and young people about inspections of local services for children and young people with SEND
SEND law and guidance – Code of practice, SEND Regs, Children’s and families act, plus template letters from SENhelp (also see template letters)
SENDIST Tribunal -What the first tier tribunal does (also see ‘Appeals‘)
Sensory Processing Difficulties – Video
Sensory Processing Difficulties – Info
Sensory Processing Difficulties – Book
Sensory Processing Difficulties – Top tips for everyday life
Sleep tips | Sleep cards | Sleep mythbuster – From Cerebra
Social care in England and Social care in Wales – Cerebra
Social care information, advice and support – Inclusion London has worked with solicitors and specialists such as professor Luke Clements to put together resources to help disabled people and DDPOs understand how the system should work and what the law says.
Social Emotional Mental Health Needs (SEMH) – Toolkit from nasen
Social Emotional Mental Health Needs (SEMH) – Beacon House
Social Communication Disorder. Semantic Pragmatic Disorder – RCSLT
Solicitors: HCB
Solicitors: Irwin Mitchell
Solicitors: Simpson Millar
Solicitors: Sinclairs Law
SOS!SEN Charity – SOS!SEN offer a free, independent and confidential telephone helpline, drop in advice centres and information.
Special Educational Needs and Disability Regulations 2014 England Amendments
Special Educational Needs Code of Practice 2014
Special Educational Needs Code of Practice Guide – Douglas Silas Solicitors
Speech Therapy Providers in and around Bristol
Speech and Language Therapy Factsheet – RCSLT
Speech, language and communication needs – Ican helpline
Speech, Language and Communication needs CPD for Teachers – Communication Trust
Speech, Language and Communication needs Information for Student Teachers – Communication Trust
Speech Sound Disorder – Child Mind
Stammering – Stammering.org
Supporting Speech, Language and Communication Needs – Communication Trust
Support Plan- a non statutory plan used by education settings for pupils that need extra support
Supporting Pupils with Medical Conditions at School – Statutory guidance about the support that pupils with medical conditions should receive at school.
T
#TeamSEND – You can find others within the SEND community for advice or support on Twitter by searching the hashtag #TeamSEND
Template letters – Addressing a wide range of difficulties parents and carers of young people with SEND might face. From Cerebra
Template letters – Appealing and challenging a wide range of difficulties parents and carers face accessing SEND processes
Top up panel – a panel that decides how much funding a school will receive to support withs with SEND. Settings can request top up funding 3 times a year, they fillout a form requesting the funds and what they will be used for. Top up panels fund EHCPs and non statutory plans, like Bristol upport plans
Transition support – Downloadable resources available on our homepage
Transition to adulthood – audit tool for professionals
Transport advice -Simpson Millar Solicitors
Transport blog -By @KaraChrome
Transport support– SENTAS provides parents and young adults with information, advice and advocacy around issues with SEND home to school and college transport
Trauma Advice Information and Resources – Beacon House
Tribunals: -Also see ‘Appeals’
V
Visual Impairment -RSCB
Visual Processing difficulties -Understood.org